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LA, Riverside And Orange Counties Will Be Among The First In California To Implement Judge-Ordered Mental Health Care

On a recent afternoon Diana and Lorrin Burdick share pictures and swap stories with three other parents over a lunch of chicken curry sandwiches and fruit salad. They’re hosting an informal but semi-regular support group at their home in suburban Rancho Cordova east of Sacramento.

“Yeah, she loves having family dinners. Sunday is family dinner day now,” says Elizabeth Kaino Hopper as she and husband, Marvin, show a recent picture of their 37-year-old daughter, Christine.

This ordinary lunch with friends is also a vital one: Every parent here has an adult child with a severe mental illness; a son or daughter who’s also struggled with homelessness, substance abuse and arrests. The gatherings give them the chance to share stories, strategies and challenges of having a child with a serious and untreated mental disorder.

“That’s pretty much what he looks like now,” says Diana Burdick as she shows the others a phone shot of her son, Michael, 49, who has lived on the streets for a nearly a decade.

“Aww, see, anybody looking at him would say, he’s not right, he doesn’t feel good,” Elizabeth Hopper says, shaking her head in between lunch bites.

Eight California counties are going first in a planned statewide, controversial experiment to try to fix a seemingly intractable problem every parent around the table is grappling with: How to get treatment and support for loved ones with serious mental health challenges, mostly schizophrenia and other psychotic disorders.

Some of these people end up cycling in and out of police holds, jails, emergency rooms and homeless shelters and encampments. The nationwide problem is particularly acute in California, which accounts for nearly one third of all people in the United States experiencing homelessness.

Some cities including Los Angeles estimate that 10% to 17% of individuals who are unsheltered have been diagnosed with a serious mental illness. But the fact that so many go without a formal diagnosis, experts say the true percentage is likely far higher.

Why We Sued to End CARE Court

An unprecedented number of Californians live on the streets and face severe mental illness. It is gut wrenching to see. The CARE Act accurately describes this humanitarian crisis but prescribes a wrong, inhumane solution. Not only is creating this new court system to round up individuals unconstitutional, it is bad policy subject to pervasive societal biases and disproven methods of treating mental illness. That is why on January 26, Disability Rights California, Western Center on Law & Poverty, and the Public Interest Law Project sued Governor Newsom to put an end to CARE Court.

Contrary to some strong opinions that CARE Court is “California’s only real plan for helping our most vulnerable and seriously mentally ill,” Governor Newsom never planned to truly provide behavioral health treatment and housing through this bill. The CARE Act does not mandate counties to provide behavioral health treatment or housing; it creates no new rights or benefits for people with schizophrenia and other psychotic disorders who are summoned to court to join the CARE process. Rather, all CARE Court-ordered services are “subject to available funding and all applicable federal and state statute and regulations, contractual provisions, and policy guidance governing initial and ongoing program eligibility” (Welf. & Inst. Code § 5982(d)). In other words, services will only be provided as they are available.

Here’s a reality check for Sacramento: behavioral health and housing services are not available to all Californians. A person who needs treatment and housing usually cannot receive either in a timely manner because there are not enough mental health providers, facilities, and affordable housing units to access.

A UCSF study projected that if nothing significant changes by 2028, California will have 50% fewer psychiatrists to meet demand for behavioral health services, and 28% fewer psychologists, therapists, and social workers combined to meet the demand. We see this play out daily with stark disparities based on income and race. For example, in Compton, there are only five licensed psychologists compared to Santa Monica, which has 361.

Compounding CARE Court’s false promises is the affordable housing shortage. There is a shortage of 1 million affordable rental homes for extremely low income renters. And the CARE Act does not appropriate one single penny for housing.

The CARE Act pretends this backlog of services and housing does not exist, despite advocates’ cries to increase funding for our behavioral health systems and affordable housing instead of funding new courts. If we invested in behavioral health and housing to their full level of need, and give some time for the workforce to catch up, we would already have a better plan than CARE Court.

So, if not guaranteeing behavioral health or housing services, what does the CARE Act provide? The law paves the way to eventually institutionalize people who are unhoused and have schizophrenia and other psychotic disorders, out of sight from the very people who support CARE Court.

The biggest lie about CARE Court is that it is not involuntary treatment. CARE Court is an involuntary, coercive system. There are consequences for not following through with a CARE plan. When a person does not comply with the exact terms of a CARE plan, the court must refer the person for conservatorship with “a presumption . . . the [person] needs additional intervention beyond the supports and services provided by the CARE plan” (Welf. & Inst. Code § 5979(a)(3)). A person who, for any reason, does not follow through their court order, would more easily be conserved and lose their rights to control their own medical care, finances, and housing preferences. No matter how Governor Newsom and his proponents want to spin CARE Court, the law speaks for itself.

Existing laws already provide for involuntary treatment of persons found dangerous to themselves or others. But the CARE Act takes this a giant step further by permitting a judge to impose restrictions on persons deemed “likely” to become dangerous. Little guidance is offered for judges to make that speculative determination.

The CARE Act was enacted despite any evidence that it would be effective. As Disability Rights California wrote in May 2022 on behalf of our coalition opposing the CARE Act, voluntary treatment works and involuntary treatment does not:

[N]o studies exist to prove that a court order for outpatient treatment in and of itself has any independent effect on client outcomes. Studies show that any positive effects that result from outpatient commitment are due to the provision of intensive services, and whether court orders have any effect at all in the absence of intensive treatment is an unanswered question.

In determining how we provide medical care and housing for Californians, our civil rights and social policies can co-exist. The state should house people first, then let people decide their course of treatment. The Legislature has not explained why it cannot appropriate resources to fund all medically necessary care and permanent affordable housing for individuals and also protect their dignity and privacy interests at the same time. What is clear is that faced at a moral crossroads, Governor Newsom and the Legislature chose a more politically expedient route instead of a benevolent and effective one.

Civil rights groups file lawsuit to block Newsom’s plan for treating people with mental illness

A coalition of disability and civil rights advocates filed a lawsuit Thursday asking the California Supreme Court to block the rollout of Gov. Gavin Newsom’s far-reaching new plan to address severe mental illness by compelling treatment for thousands of people.

In their filing, representatives from three organizations — Disability Rights California, Western Center on Law and Poverty and the Public Interest Law Project — asked the state’s high court to strike down as unconstitutional the program known as CARE Court (for Community Assistance, Recovery and Empowerment). The groups argue that the sweeping new court system will violate due process and equal protection rights under the state constitution, while “needlessly burdening fundamental rights to privacy, autonomy and liberty.”

Newsom announced CARE Court in March as a new strategy to help an estimated 7,000 to 12,000 Californians struggling with severe mental health disorders like schizophrenia access housing, treatment and mental health services. It was signed into law in September as Senate Bill 1338.

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CA’s governor wants mental health courts for homeless people

“The Western Center on Law and Poverty pointed to a 2020 state audit that found many people put under conservatorship wound up with limited treatment and follow-up while the San Francisco Public Defender’s Office called the proposal a “band-aid” approach falling short of the fully funded mental health system California needs.”

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If you think what’s happening to Britney Spears is bad, you should know more about conservatorship in California

Free Britney – the call to end the conservatorship of superstar Britney Spears has expanded across the globe, thanks to a grassroots movement recently bolstered by the New York Times documentary, “Framing Britney Spears.” Since the beginning of her conservatorship critics have demanded its termination; advocates were first dismissed as overzealous fans, but their claims were based on facts uncovered in legal filings, raising legitimate concerns about the probate court system. Spears’ case, while singular in fame and fortune, illustrates the complications of conservatorship, particularly in California.

Britney Spears has been under conservatorship since 2008, though, she continues to fight it in court, and she continues to be highly productive. Paradoxically, Spears has been denied the freedom to make phone calls, operate a motor vehicle, and access her finances, all the while recording four studio albums and performing in four world tours, in addition to a four-year Las Vegas residency.

It is often the case, as it appears to be with Spears, that conservatorship is inappropriate or inadequate for the problem it seeks to solve. Nevertheless, California legislators continue to propose expanding the conservatorship system – 2021 legislative session included.

There are different conservatorships in California. One stems from the 1967 Lanterman-Petris-Short Act (LPS), which established California’s system of conservatorship and involuntary treatment for people who are gravely disabled — meaning they can’t meet basic needs. Those conservatorships are initiated by medical or legal professionals. Another, known as probate conservatorship, has less stringent standards and can be initiated by anyone, including parents. Probate conservatorship, which is what Spears is under, is meant to protect people who are unable to provide for their own needs, or to protect them from undue influence.

Spears’ case illustrates how extreme conservatorship can be – even for someone as wealthy and famous as she; it also represents the tip of a large iceberg. If one of the most successful pop stars of the century can be deemed unfit to control her life, what happens to people who don’t have nearly the amount of fame or money?

Britney Spears can work and make money, even though conservatorship is supposed to be for people who can’t. For those in the system without money, they or their families sometimes receive astronomical bills (in the one-million-dollar range) upon release from California’s State Hospital system, which treats individuals with severe disabilities under LPS conservatorship. The bills say the state can go after the former patient’s spouse, children, parents, and estates for payment. Still, in spite of the potentially devastating financial and psychological effects, California continues efforts to expand conservatorship as a solution for mental illness, instead of addressing root causes for what leads people to be conserved.

Last year, a proposed ballot measure misleadingly titled the “California Compassionate Intervention Act” aimed to make it easier for police to detain people on the street who exhibit signs of mental illness, and to eventually conserve them. While the measure did not make it on the ballot, it received substantial attention.

Other measures also sought to expand forced conservatorship, despite the fact that advocates and mental health practitioners say often and repeatedly that the problem should first be addressed by adequate wrap around services — mental and physical health care, housing, and economic resources at earlier points in a person’s life. Instead of making sure those needs are met, California continued with legislation like SB 1045 and its amendment, SB 40, which allows participating municipalities to force people sent to mental health treatment more than eight times in one year to be automatically conserved.

Though SB 1045 and SB 40 were highly controversial and some counties chose not to participate, their passage shows the appetite for conservatorship as an answer to California’s fundamental social failings. That appetite included other failed proposals, like AB 1971  and AB 2156, which would have expanded to definition of “gravely disabled” to make conservatorships easier to obtain.

Also last year, the state auditor found that under California’s conservatorship system, many people who are conserved end up with limited treatment options – conserved with nowhere to heal. Additionally, the auditor found that once people are released from involuntary holds, most do not get follow up treatment. What’s more, there is also confusion over how public dollars are spent for mental health programs.

The case of Britney Spears exposes how well-intentioned policy can create extreme and undesirable outcomes. While the decision to control a person, their finances, and their movement may seem like a straight-forward solution, what the state auditor’s findings show is what advocates and mental health professionals have said all along – longer term solutions for mental illness, homelessness, and other factors leading to conservatorship involve addressing the root cause.

Does everyone have access to long-term housing, treatment for major trauma, access to drug treatment programs, and access to mental and physical health care throughout their life? Or in Britney’s case, refuge from constant prying eyes and abusive, stalking paparazzi and a bloodthirsty public? The answer is no, California has not invested nearly enough to ensure that those very basic needs are met. In light of inaction on those fronts, expanding conservatorship is not a solution, but rather, a surface fix that will never address the poison at the base of the well.

 

Courtney McKinney is the Director of Communications for Western Center on Law & Poverty. Kevin Wu is a Free Britney activist and runs @freebritneyla. He is featured in “Framing Britney Spears.”

Audit: Don’t make it easier to force mentally ill Californians into treatment — just improve treatment

“Sadly, my takeaway was ‘I told you so.’ And I hate being right,” said Jen Flory, a policy advocate at the Western Center on Law & Poverty. “It’s pointing out that people aren’t getting the services that they need. It’s not that the LPS Act itself doesn’t work. What we hear from our community partners is people need services.”

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